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Medical Marijuana Patient with ALS Outlives Her Doctors

cannabis for ALS Marijuana heals ALS Pot for ALS CURE for ALS: CANNABIS

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#1 SkunkyAroma

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Posted 11 February 2018 - 08:53 PM

Medical Marijuana Patient with ALS Outlives Her Doctors

 

 

Cathy Jordan first noticed something was wrong in summer of 1985 when she couldn’t pick things up. Her muscles weren’t responding. In 1986, she was diagnosed with ALS , also known as Lou Gehrig's disease. Nearly 20 years later she is still alive thanks to cannabis, her medicine of choice and necessity.
 
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In April, Cathy Jordan sat on a panel at the Cannabis Therapeutics Conference in Arizona. Before taking the stage, she discussed the medical use of cannabis for ALS with Jahan Marcu, the Philadelphia Medical Marijuana Examiner.

Cathy Jordan first noticed something was wrong in summer of 1985 when she couldn’t pick things up. Her muscles weren’t responding. In 1986, she was diagnosed with ALS (Amyotrophic Lateral Sclerosis). ALS, also known as Lou Gehrig’s disease, is characterized by the death of motor neurons leading to loss of limb control, breathing, swallowing, speech and widespread cellular dysfunction. Most cases of ALS are sporadic; it is not a viral or autoimmune disease.

“Most people start using a feeding tube because they are afraid of choking to death”, says Cathy.

In 1986, she was given 3 - 5 years to live according to her neurologist. Nearly 3 decades later, she is still alive and living with ALS.

“All my docs are retiring or dead. I’ve outlived 5 support groups and 4 neurologists,” said Cathy. This actually posed a problem for Cathy who lost her social security benefits because she lived passed her expiration date. The state of Florida said her ID and regular documentation wasn’t good enough to prove she was alive and to continue to receive benefits. She had to ask her neurologist to fill out paperwork to prove she was still alive.

Mrs. Jordan began using Cannabis from a Florida grower to treat her ALS in the late 80’s. “Donny Clark provided my medicine, grown in the Myakka River Valley…he was busted and sentenced to life in prison, and that strain of Cannabis was lost.”

“You know, they say the fountain of youth is in Florida. Maybe it was something in the soil that made this plant helps me…and I don’t understand why doctors wouldn’t study me. But I still would like to know why this is helping me.”

At first, doctors wouldn’t accept that marijuana could be responsible for Cathy’s extended life span. Other doctors thought that smoking anything would impair her lung function and even threatened to have this paralyzed women committed, simply based on the fact that she thought Cannabis was actually helping her.

“I visited a neurologist at Duke University. When I told him that I was smoking Cannabis, he didn’t know what to do with me. He was afraid. He wouldn’t even take my blood pressure because I was using an illegal drug.” Cathy adds: “I asked my docs if they would take a drug if it was neuroprotective, an antioxidant and an anti-inflammatory. They say ‘yes’ and ask me if I know of one. Cannabis, I tell them.”

Nearly three decades later, the science has caught up with this miracle patient. Scientists created a mouse with ALS, which was very exciting for Cathy. Research has shown that THC and other cannabinoids can benefit mice with ALS. The mounting evidence of cannabinoids halting the progression of ALS has started to change the attitudes of doctors and prominent researchers have recently called for ALS clinical trials with Cannabis or cannabinoids.

“They all agree today that I should smoke Cannabis,” says Cathy. “Twenty six years later, my original neurologist fought [successfully] to make sure Cannabis is legal for patients in Delaware.”

Researchers think Cannabis may help ALS patients relieving pain, spasticity, drooling, appetite loss and has minimal drug-drug interactions and toxicity.

“There are ALS patients associations that fight for the right of patients to die with dignity. But what about my right to life?” asks Cathy. “Keeping my medicine illegal removes my right to life.”



#2 SkunkyAroma

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Posted 11 February 2018 - 09:03 PM

Study: 9 in 10 ALS patients infected with Lyme bacteria

 

 

There have been several studies that found a strong link between Lyme disease and Amyotrophic Lateral Sclerosis. The Halperin paper is one. The Halperin paper found Lyme infection in nearly all ALS patients in their study group, but Halperin, a long-time "debunker" of chronic Lyme disease dismissed this as a "coincidence" and the paper's authors even fudged the numbers in their summary to make the Lyme infection rate seem "only" 47%.

Not too long ago, scientific research papers were freely available online but nowadays, most are zealously guarded by a few publishing conglomerates that charge about the same for an article as you would expect to pay for the latest music DVD of a superstar. When you purchase, you give them your name, address, email address and IP address and have to agree not to reproduce the article. The whole system is designed to keep medical breakthroughs secret to the public in general and journalists in particular, and to intimidate and prosecute those who seek to uncover such secret knowledge. Aaron Swartz sacrificed his life trying to change this situation.

No wonder that the average person with ALS has no inkling of the fact that there is solid research, showing that ALS is strongly associated with Lyme disease.

The Halperin paper mentions in its first paragraph (green box below) that nine out of nineteen ALS patients tested positive for Lyme. The notoriously unreliable ELISA test was used, a test with an unacceptably high proportion of false negatives. So that would be 47% of ALS patients testing positive for Lyme.

47% would be an astonishingly high number by itself, but the paper's authors, led by the infamous "Chronic Lyme does not exist" anti-Lyme activist Dr. Halperin "cooked the books" and only casually mentioned further in the paper (red boxes below), that in fact it was 21 out of 24 ALS patients that tested Lyme-positive, making it 88%, or almost nine out of ten patients. Since the false-negative rate of the tests used is notoriously high, we are justified in concluding that most likely, every single ALS patient in their study was Lyme-positive.

The authors decided to pretend that cell-mediated immunity to Borrelia did not count as "Lyme-positive", even though it is a certain indicator of internal exposure to the bacterium.[1]

What was the likelihood, in 1990, the date of the study, of a person with ALS testing positive for Lyme disease? There were around 8,000 reported cases in 1990. IgM antibodies imply active Lyme infection, so we would expect to see only around 10,000 Americans testing positive for IgM antibodies. IgG antibodies last much longer, so we will take all reported cases from 1982 to 1990 into account, approx. 35,000 patients testing IgG positive. Reported cases are largely based on positive test outcomes rather than clinical diagnoses, so we do not have to correct for false positives. However we do have to correct for actual cases vs. reported cases. The most alarmist estimations now in 2011 are that there are ten times more Lyme cases than reported. Assuming that in 1990, Lyme infections occured five times more often than reported to the CDC, we would expect 5 x (8,000 + 35,000) = 215,000 Americans to test positive for Lyme in 1990.

 

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Source: CDC

In 1990, the US population was 249 million people. The percentage of people testing Lyme-positive would therefore be roughly estimated as (215,000 / 249,000,000) * 100% = 0.086%.

The mainstream medical establishment claims that chronic Lyme disease is very rare, and that Lyme disease certainly is generally not the cause of ALS. Therefore, according to their own statistics, if Lyme disease did not cause ALS, one would expect to see approx. 0.086% of ALS patients testing positive for Lyme disease. Instead, 87.5% of ALS patients tested positive in the Halperin paper. At least 21 out of 24 ALS patients had been infected with the Borrelia spirochete. Fasle negatives are very common, false positives are not.

Let that sink in for a moment. Instead of finding 0.086% Lyme-positive ALS patients, we find 87.5% Lyme-positive ALS patients in a large enough sample to be statistically significant. That is 87.5 / 0.086 = 1017 times as many Lyme positive ALS patients as we expected to see. According to the Halperin study, American ALS patients have about a thousand times greater chance to be Lyme-positive than the average American. Not 1000 percent, mind you. 1000 times. That is a 100000% greater occurence of being Lyme-positive. A hundred thousand percent more.

Critics may point out that in fact, about 1% of the US population tests positive for Lyme disease, instead of the statistics-based guesstimate of 0.086%. That would still mean that the ALS patients from the Halperin paper were a hundred times more likely to be Lyme-positive than the general population.

This means that which ever way you interpret the numbers, they state a solid case and that in the face of such overwhelming evidence, Lyme should be assumed the underlying cause of ALS. Absence of evidence is not evidence of absence, so a paper by the infamous anti-Lyme activist Dr. Steere who claims to have found no ALS patient testing positive for Lyme can not be considered counter-evidence, but merely evidence of ulterior motives.

We stress that unlike Atkinson-Barr's testimony, the Halperin paper is not merely anecdotal evidence by someone who is not even a medical doctor - it is a peer-reviewed, published medical study conducted by a team of qualified medical scientists, using control groups and other safeguards.

And even though their conclusion is that Lyme has nothing to do with ALS because they consider their findings to be "coincidental", we think their findings speak for themselves. Nine out of ten ALS patients were infected with the Lyme spirochete, whereas only one in a hundred random people are. Coincidence?


We reproduce part of the Halperin paper here in "fair use":

 

"Immunologic Reactivity Against Borrelia burgdorferi in Patients With Motor Neuron Disease" by Halperin, et al., Archives of Neurology, May 1990, Volume 47, Number 5, pages 586-594.

 

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